So, I guess it’s time we address our sweet Addyson.
I get questions regarding her every. single. day. Whether it be on social media or just out shopping. To be honest, I forget that she is even “different”. Just today, while at the splash pad, we met new friends and while talking to the mom and children, I never once thought to inform them why Addyson has no hair. Honestly, it was nice that they didn’t even ask about it. Those moments tend to be rare.
Okay, so let’s just clear the air now and put your mind at ease, no, Addyson does NOT have cancer.
Ahhh! Yes, we are the lucky the ones.
What is it?
Addyson has Alopecia (al·o·pe·ci·a). Alopecia is a disorder caused by both parent’s genetics and your own body. Basically, your white blood cells attack the hair follicles causing little to no hair growth. There are three different types of alopecia, Areata, Totalis, and Universalis.
When Addyson was first diagnosed with alopecia, at just 18 months old, they told us she had Alopecia areata. Now, because she has little to no hair on her entire body, we feel it’s developed to Alopecia Universalis, which is the complete loss of hair on the scalp, face, and body. Alopecia has no other side effect other than the loss of hair. She is 100% happy and healthy!
While I could go on and on about this disorder, I’d love for you to get to know more about our amazing little girl.
Addyson is such a bright young girl. Her personality shines through on everyone. She NEVER meets a stranger. Her heart is HUGE! She LOVES everyone and always sees the good in every situation. Her love for all animals is undeniable. Oh, and what a little mama she is! If you have littles, just sit back and relax, because Addyson is taking over! To be honest, watching her is humbling. We could all learn a few things from just sitting back and watching her in action.
She also has many struggles. Besides being a girl with no hair, she is working through a few learning disabilities. Reading hasn’t come naturally to her causing her to be below level. She has a working memory deficit, and battles with ADD which makes it that much harder to learn. But, never once, has she used those things as an excuse. She pushes hard and finds a way. I’ll touch more on this later as it deserves its own post.
From the time she was diagnosed with Alopecia and then later the ADD and learning disabilities, we knew as her parents that we weren’t going to let these diagnoses affect her everyday life. It has been our goal to show Addyson how to be confident with who she is and to know that NONE of these things define who she is. Of course, there are days that are harder than other’s and we are always there to push through them with her.
Her strength and determination are amazing! Honestly, I could not be more proud to be her mom.